Running To Sonoma

For those of you not on certain other avenues of communication, here is an update on our lovely TK.  I am paraphrasing to start, then copying her word-for-word:

She had a sigmoidoscopy earlier this week, and the results are in.  Since she “had the surgery to reconnect on may 27, the entire 8 inches of colon/rectum left has gotten completely inflamed, which is why i’m having the pain and blood. he said “That is awfully fast for that to happen” — for the crohn’s to come back so soon after a period of bowel rest. it’s not a good thing, it’s a rare thing and it’s too bad.

i only have two options:

1) tysabri, this very experimental drug that was originally for MS

2) or to get the entire bottom half out and go back to the ileostomy forever.
as in, forever-ever. there’s no reversal. so i would have to have an ostomy bag
for the rest of my life, however long that’s going to be.”

There’s more that she wrote, but that’s the short of it.  She’s going for the drug, and then will be throwing every single other home-remedy type option at it: acupuncture, whole foods, flaxseed oil, a whole bunch of things that she’s looked into.  She has to heal in the meantime, as she has a raging infection and is still recovering from the recent surgery.

I want to DO something, other than running, other than sitting here writing about it.  But that’s all I CAN do at the moment.  In speaking with Denise about this, she said it perfectly: “It just makes me more determined to keep running for a cure so that she doesn’t have to go through stuff like this.”  TK, or anyone else in the future. 

If you are interested in helping, please consider a donation to the CCFA through my Team Challenge website.  Please contact me if you would prefer to make a donation off-line – I’d be happy to send you my mailing address.  The majority of any contribution you make goes towards the Crohn’s and Colitis Foundation of America, and towards finding a cure.

Thanks so much.

TK – the Hot Chicken Wings are all flapping good thoughts and prayers in your direction.  xoxo